Infected Blood Inquiry: recommendations for recognition, healthcare and patient safety
The Infected Blood Inquiry made recommendations to improve patient care and safety, and strengthen the voice of patients in the healthcare system.
This debate pack has been compiled ahead of the debate on Access to medicines for people with cystic fibrosis and other rare diseases, to be held on Tuesday 8 December 2015 at 9.30am in Westminster Hall. The Member in charge of the debate is Ian Austin.
Access to medicines for people with cystic fibrosis and other rare diseases (152 KB , PDF)
The Cystic Fibrosis Trust’s “Stopping the Clock campaign” aims to ensure that as many people as possible will have access to “precision medicines”, which treat the underlying genetic causes of cystic fibrosis, not just the symptoms.
Prior to the Westminster Hall debate, the Cystic Fibrosis Trust and Parliament’s Digital Outreach Service have organised a digital debate on Twitter. The debate starts at 5pm on Monday 7 December and you can take part in this discussion using the hashtag #CFdebate.
The idea for digital debates linked to debates in Westminster Hall came from the Speaker’s Commission on Digital Democracy.
Access to medicines for people with cystic fibrosis and other rare diseases (152 KB , PDF)
The Infected Blood Inquiry made recommendations to improve patient care and safety, and strengthen the voice of patients in the healthcare system.
Pregnancy tests that involved taking tablets containing hormones were used from the late 1950s until the 1970s in the UK. The use of these medicines has been linked to birth abnormalities but the evidence is disputed.
A summary of statistics on sexual and reproductive health in England, with a focus on sexually transmitted infections (STIs) and HIV, contraception, conception and abortion, and related service provision.